KNOWLEDGE, PERCEPTION, AND BURDEN OF FAMILY IN TREATING PATIENTS WITH SCHIZOPHRENIA WHO EXPERIENCE RELAPSE

Suryani Suryani, Eka Wahyu Ningsih, Aan Nuraeni


DOI: https://doi.org/10.33546/bnj.683

Abstract


Background: Schizophrenia is a mental disorder with a high incidence and relapse due to a lack of family support. Families do not understand how to treat patients with schizophrenia. There are several factors related to the family’s abilities in treating patients with schizophrenia, there are the level of family’s knowledge, perception, and burden.

Objective: This study aimed to describe the knowledge, perception and burden of family in treating patients with schizophrenia who experience a relapse.

Methods: The research used descriptive quantitative method. Samples were selected by consecutive sampling technique and obtained 100 respondents. Data were collected by a questionnaire consisting of family knowledge and perception developed by the researcher, and Zarit Burden Interview scale was used to measure the family burden. Data were analyzed using percentages, score T, and the Zarit Burden Interview analysis.

Results: Findings showed that 31 respondents (31%) had good knowledge, 42 respondents (42%) had sufficient knowledge, and 27 respondents (27%) had insufficient knowledge. In terms of perception, 66 respondents (66%) had a positive perception and 33% had a negative perception. In addition, 42 respondents (42%) had moderate to heavy burden levels, 23 respondents (23%) had a very heavy level of heavy burden, and 3 respondents (3%) with very heavy levels of burden.

Conclusions: Based on the results, it is necessary to increase the frequency of health education for the families. In addition, it is also important to hold a sharing program between families to reduce family burden.


Keywords


family’s burden; knowledge; perception; schizophrenia

Full Text:

PDF

References


Adeosun, I. I. (2013). Correlates of caregiver burden among family members of patients with schizophrenia in Lagos, Nigeria. Schizophrenia Research and Treatment, 2013. https://doi.org/10.1155/2013/353809

Angermeyer, M. C., & Matschinger, H. (2003). The stigma of mental illness: effects of labelling on public attitudes towards people with mental disorder. Acta Psychiatrica Scandinavica, 108(4), 304-309. https://doi.org/10.1034/j.1600-0447.2003.00150.x

Arif. (2006). Skizofrenia memahami dinamika keluarga pasien [Schizhoprenia understanding the dynamic of patient's family]. Bandung: Refika Aditama.

Bédard, M., Molloy, D. W., Squire, L., Dubois, S., Lever, J. A., & O'Donnell, M. (2001). The Zarit Burden Interview: a new short version and screening version. The Gerontologist, 41(5), 652-657.

Berglund, N., Vahlne, J. O., & Edman, Å. (2003). Family intervention in schizophrenia. Social Psychiatry and Psychiatric Epidemiology, 38(3), 116-121. https://doi.org/10.1007/s00127-003-0615-6

Chien, W.-T., & Lee, I. (2002). Educational needs of families caring for patients with schizophrenia. Journal of Clinical Nursing, 11(5), 695. https://doi.org/10.1046/j.1365-2702.2002.00649.x

Chien, W.-T., Norman, I., & Thompson, D. R. (2004). A randomized controlled trial of a mutual support group for family caregivers of patients with schizophrenia. International Journal of Nursing Studies, 41(6), 637-649. https://doi.org/10.1016/j.ijnurstu.2004.01.010

Christopher, J. H. (2012). A psychosocial study of persons with chronic mental illness and family caregivers burden. Retrieved from https://shodhganga.inflibnet.ac.in/bitstream/10603/8757/20/20_appendices.pdf

Dalky, H. F. (2012). Perception and coping with stigma of mental illness: Arab families’ perspectives. Issues in Mental Health Nursing, 33(7), 486-491. https://doi.org/10.3109/01612840.2012.676720

Farkhah, L., Suryani, S., & Hernawaty, T. (2017). Faktor caregiver dan kekambuhan klien skizofrenia [Caregiver factors and schizophrenic clients recurrence]. Jurnal Keperawatan Padjadjaran, 5(1).

Friedman, M. M., Bowden, V. R., & Jones, E. G. (2010). Buku ajar keperawatan keluarga: Riset, teori, dan praktek [Family nursing teaching book: Research, theory, and practice]. Jakarta: EGC.

Gutiérrez-Maldonado, J., & Caqueo-Urízar, A. (2007). Effectiveness of a psycho-educational intervention for reducing burden in Latin American families of patients with schizophrenia. Quality of Life Research, 16(5), 739-747. https://doi.org/10.1007/s11136-007-9173-9

Kate, N., Grover, S., Kulhara, P., & Nehra, R. (2013). Positive aspects of caregiving and its correlates in caregivers of schizophrenia: a study from north India. East Asian Archives of Psychiatry, 23(2), 45.

Keliat, B. (2011). Manajemen Kasus Gangguan Jiwa: CMHN Intermediate course [Case management of mental disorder]. Jakarta: EGC.

Kertchok, R., Yunibhand, J., & Chaiyawat, W. (2011). Creating a new whole: Helping families of people with schizophrenia. International Journal of Mental Health Nursing, 20(1), 38-46. https://doi.org/10.1111/j.1447-0349.2010.00706.x

Knock, J., Kline, E., Schiffman, J., Maynard, A., & Reeves, G. (2011). Burdens and difficulties experienced by caregivers of children and adolescents with schizophrenia‐spectrum disorders: A qualitative study. Early Intervention in Psychiatry, 5(4), 349-354. https://doi.org/10.1111/j.1751-7893.2011.00305.x

Li, J., Lambert, C. E., & Lambert, V. A. (2007). Predictors of family caregivers' burden and quality of life when providing care for a family member with schizophrenia in the People's Republic of China. Nursing & Health Sciences, 9(3), 192-198. https://doi.org/10.1111/j.1442-2018.2007.00327.x

Motlova, L., Dragomirecka, E., Spaniel, F., Goppoldova, E., Zalesky, R., Selepova, P., . . . Höschl, C. (2006). Relapse prevention in schizophrenia: Does group family psychoeducation matter? One-year prospective follow-up field study. International Journal of Psychiatry in Clinical Practice, 10(1), 38-44. https://doi.org/10.1080/13651500500305424

Papastavrou, E., Charalambous, A., & Tsangari, H. (2009). Exploring the other side of cancer care: the informal caregiver. European Journal of Oncology Nursing, 13(2), 128-136. https://doi.org/10.1016/j.ejon.2009.02.003

Riskesdas. (2018). Hasil riset kesehatan dasar [Basic health research results]. Retrieved from http://labdata.litbang.depkes.go.id/menu-progress-puldata/progress-puldata-rkd-2018

Sadock, B., & Sadock, V. (2010). Kaplan & Sadock buku ajar psikiatri klinik [Kaplan & Sadock clinical psychiatry teaching book]. Jakarta: EGC.

Schulze, B., & Angermeyer, M. C. (2003). Subjective experiences of stigma. A focus group study of schizophrenic patients, their relatives and mental health professionals. Social Science & Medicine, 56(2), 299-312. https://doi.org/10.1016/s0277-9536(02)00028-x

Srinivasan, T., & Thara, R. (2001). Beliefs about causation of schizophrenia: Do Indian families believe in supernatural causes? Social Psychiatry and Psychiatric Epidemiology, 36(3), 134-140. https://doi.org/10.1007/s001270050302

Stuart. (2009). Principles and practice of psychiatric nursing (10th ed.). Missiouri: Elsevier.

Sulistyorini, N., Widodo, A., & Zulaicha, E. (2013). Hubungan pengetahuan tentang gangguan jiwa terhadap sikap masyarakat kepada penderita gangguan jiwa di Wilayah Kerja Puskesmas Colomadu 1 [Relationship of knowledge about mental disorders and people's attitudes towards people with mental disorders in the working area of Public Health Center of Colomadu 1]. Universitas Muhammadiyah Surakarta.

Suryani, S. (2015). Caring for a family member with schizophrenia: The experience of family carers in Indonesia. Malaysian Journal of Psychiatry, 24(1).

Suryani, S., Welch, A., & Cox, L. (2013). The phenomena of auditory hallucination as described by Indonesian people living with Schizophrenia. Archives of Psychiatric Nursing, 27(6), 312-318. https://doi.org/10.1016/j.apnu.2013.08.001

Suryani, S., Widianti, E., Hernawati, T., & Sriati, A. (2016). Psikoedukasi menurunkan tingkat depresi, stres dan kecemasan pada pasien tuberkulosis paru [Psychoeducation reduces depression, stress and anxiety in pulmonary tuberculosis patients]. Jurnal Ners, 11(1), 128-133.

Weret, Z. S., & Mukherjee, R. (2014). Prevalence of relapse and associated factors in patient with schizophrenia at Amanuel Mental Specialized Hospital, Addis Ababa, Ethiopia: institution based cross sectional study. International Journal of Interdisciplinary and Multidisciplinary Studies (IJIMS), 2(1), 184-192.

WHO. (2014). Schizophrenia. Retrieved from http://www.who.int/mediacentre/factsheet/fs397/en/

Yap, P. (2010). Validity and reliability of the Zarit Burden Interview in assessing caregiving burden. Annals Academy of Medicine Singapore, 39, 758-763.

Yusuf, A. J., Nuhu, F. T., & Akinbiyi, A. (2009). Caregiver burden among relatives of patients with schizophrenia in Katsina, Nigeria. South African Journal of Psychiatry, 15(2). https://doi.org/10.4102/sajpsychiatry.v15i2.187


Refbacks

  • There are currently no refbacks.




Copyright (c) 2019 Belitung Nursing Journal

Creative Commons License
This work is licensed under a Creative Commons Attribution 4.0 International License.