The importance of providing palliative care for patients with severe COVID-19 in Indonesia
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Keywords

COVID-19
palliative care
end-of-life care
terminal care
patient-centered care
nursing
Indonesia

How to Cite

Effendy, C., & Kristanti, M. S. (2021). The importance of providing palliative care for patients with severe COVID-19 in Indonesia. Belitung Nursing Journal, 7(5), 438-442. https://doi.org/10.33546/bnj.1466

Abstract

Patients with Coronavirus Disease 2019 (COVID-19), particularly those with a severe condition, might not survive. Pandemic situation challenges the healthcare providers in addressing palliative care to the patients. This paper aimed to describe the importance of providing palliative care for patients with severe COVID-19 in Indonesia. We used a case scenario to illustrate the common condition experienced by a patient with severe COVID-19. Health care providers in Indonesia could address palliative care for patients with COVID-19 by focusing on controlling the symptoms, avoiding futile intervention, and connecting the patients and their families. Nurses need to consider the patients’ needs for family supports, even though not in physical or psychosocial support, and help the patients who need end-of-life care to be dying with dignity. Communication technology must be utilized optimally by healthcare providers to realize the communication among the patients, families, and health workers. 

https://doi.org/10.33546/bnj.1466
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References

Bajwah, S., Wilcock, A., Towers, R., Costantini, M., Bausewein, C., Simon, S. T., . . . Higginson, I. J. (2020). Managing the supportive care needs of those affected by COVID-19. European Respiratory Journal, 55(4), 2000815. https://doi.org/10.1183/13993003.00815-2020

Ballentine, J. M. (2020). The role of palliative care in a COVID-19 pandemic. Retrieved from https://csupalliativecare.org/palliative-care-and-covid-19/

Bong, C.-L., Brasher, C., Chikumba, E., McDougall, R., Mellin-Olsen, J., & Enright, A. (2020). The COVID-19 pandemic: Effects on low-and middle-income countries. Anesthesia and Analgesia, 131(1), 89-92. https://doi.org/10.1213/ANE.0000000000004846

Effendy, C., Vernooij‐Dassen, M., Setiyarini, S., Kristanti, M. S., Tejawinata, S., Vissers, K., & Engels, Y. (2015). Family caregivers' involvement in caring for a hospitalized patient with cancer and their quality of life in a country with strong family bonds. Psycho‐Oncology, 24(5), 585-591. https://doi.org/10.1002/pon.3701

Fadul, N., Elsayem, A. F., & Bruera, E. (2021). Integration of palliative care into COVID-19 pandemic planning. BMJ Supportive & Palliative Care, 11(1), 40-44. https://doi.org/10.1136/bmjspcare-2020-002364

Feder, S. L., Akgün, K. M., & Schulman-Green, D. (2020). Palliative care strategies offer guidance to clinicians and comfort for COVID-19 patient and families. Heart Lung, 49(3), 227-228. https://doi.org/10.1016/j.hrtlng.2020.04.001

Ferrell, B. R., Handzo, G., Picchi, T., Puchalski, C., & Rosa, W. E. (2020). The urgency of spiritual care: COVID-19 and the critical need for whole-person palliation. Journal of Pain and Symptom Management, 60(3), e7-e11. https://doi.org/10.1016/j.jpainsymman.2020.06.034

Giorgi, G., Lecca, L. I., Alessio, F., Finstad, G. L., Bondanini, G., Lulli, L. G., . . . Mucci, N. (2020). COVID-19-related mental health effects in the workplace: A narrative review. International Journal of Environmental Research and Public Health, 17(21), 7857. https://doi.org/10.3390/ijerph17217857

Goodman, E. (2020). The Conversation Project: Helping people talk about their wishes for end-of-life care. Retrieved from http://theconversationproject.org

Hui, D., De La Cruz, M., Mori, M., Parsons, H. A., Kwon, J. H., Torres-Vigil, I., . . . Liem, C. (2013). Concepts and definitions for “supportive care,”“best supportive care,”“palliative care,” and “hospice care” in the published literature, dictionaries, and textbooks. Supportive Care in Cancer, 21(3), 659-685. https://doi.org/10.1007/s00520-012-1564-y

Kristanti, M. S., Kusmaryanto, K., & Effendy, C. (2021). Common ethical dilemmas of family caregivers of palliative patients in Indonesia. Belitung Nursing Journal, 7(3), 246-250. https://doi.org/10.33546/bnj.1457

Kristanti, M. S., Setiyarini, S., & Effendy, C. (2017). Enhancing the quality of life for palliative care cancer patients in Indonesia through family caregivers: A pilot study of basic skills training. BMC Palliative Care, 16(1), 1-7. https://doi.org/10.1186/s12904-016-0178-4

Lavoie, M., Blondeau, D., & Martineau, I. (2013). The integration of a person-centered approach in palliative care. Palliative & Supportive Care, 11(6), 453-464. https://doi.org/10.1017/S1478951512000855

Margaretha, S. E. P. M., Effendy, C., Kusnanto, H., & Hasinuddin, M. (2020). Determinants psychological distress of Indonesian health care providers during COVID-19 pandemic. Systematic Reviews in Pharmacy, 11, 1052-1059.

NHS Education for Scotland. (2020). Caring for people who are dying and those close to them amidst COVID-19 visiting restrictions. Retrieved from http://www.sad.scot.nhs.uk/media/16396/caring-for-people-who-are-dying-amidst-covid-19-visiting-restrictions-web-final.pdf

Powell, V. D., & Silveira, M. J. (2020). What should palliative care's response be to the COVID-19 pandemic? Journal of Pain and Symptom Management, 60(1), e1-e3. https://doi.org/10.1016/j.jpainsymman.2020.03.013

Prime, H., Wade, M., & Browne, D. T. (2020). Risk and resilience in family well-being during the COVID-19 pandemic. The American Psychologist, 75(5), 631-643. https://doi.org/10.1037/amp0000660

Quill, T. E., & Abernethy, A. P. (2013). Generalist plus specialist palliative care — Creating a more sustainable model. New England Journal of Medicine, 368(13), 1173-1175. https://doi.org/10.1056/NEJMp1215620

Radbruch, L., Knaul, F. M., de Lima, L., de Joncheere, C., & Bhadelia, A. (2020). The key role of palliative care in response to the COVID-19 tsunami of suffering. Lancet, 395(10235), 1467-1469. https://doi.org/10.1016/s0140-6736(20)30964-8

The Lancet. (2020). Palliative care and the COVID-19 pandemic. The Lancet, 395(10231), 1168. https://doi.org/10.1016/S0140-6736(20)30822-9

Ting, R., Edmonds, P., Higginson, I. J., & Sleeman, K. E. (2020). Palliative care for patients with severe covid-19. British Medical Journal 370. https://doi.org/10.1136/bmj.m2710

Wakam, G. K., Montgomery, J. R., Biesterveld, B. E., & Brown, C. S. (2020). Not dying alone — Modern compassionate care in the Covid-19 pandemic. New England Journal of Medicine, 382(24), e88. https://doi.org/10.1056/NEJMp2007781

Wittenberg, E., Goldsmith, J. V., Chen, C., Prince-Paul, M., & Johnson, R. R. (2021). Opportunities to improve COVID-19 provider communication resources: A systematic review. Patient Education and Counseling, 104(3), 438-451. https://doi.org/10.1016/j.pec.2020.12.031

World Health Organization. (2020). Providing palliative care during the COVID-19 pandemic: Experiences from Spain. Retrieved from https://apps.who.int/iris/handle/10665/336418

Copyright (c) 2021 Christantie Effendy, Martina Sinta Kristanti
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