“Accessibility”: A new narrative of healthcare services for people living with HIV in the capital city of Indonesia

Mahathir Mahathir, Wiwin Wiarsih, Henny Permatasari


DOI: https://doi.org/10.33546/bnj.1409

Abstract


Background: The progress of the fight against HIV is highlighted by significant change. HIV of the past is different from HIV of the present. Healthcare services have played an essential role in achieving the optimal goals needed to end the HIV epidemic. However, people living with HIV and those at risk of catching it (PLWH) often misunderstand the rapid growth of HIV healthcare service options.

Objective: This study aimed to explore the experiences of PLWH in the healthcare services featured in this study.

Methods: A qualitative phenomenological approach was used. Semi-structured interviews were conducted in 2017 with 12 PLWH who engaged with healthcare services in Jakarta, Indonesia, by using a purposive sampling technique. Semi-structured questions were asked which related to their experiences of using the services. Stevick Colaizzi Keen method was used to extract the thematic analysis of the study.

Results: The study developed four essential themes of PLWH healthcare use. They were accessibility, availability at all healthcare levels, comprehensiveness of service, and affordability.

Conclusion: Providing accessible healthcare services is considered essential by PLWH. It is also pivotal to helping people feel positive about the community-related healthcare services on offer. Nurse-led HIV services must maintain this progress by continuously evaluating the quality-of-service outcomes and promoting the accessibility of the services to the broader population.


Keywords


HIV infections; health services; patient acceptance of healthcare; nursing; Indonesia

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References


Anh, L. H. T., & Thaweesit, S. (2019). Factors associated with hepatitis B and C co-infection among people living with human immunodeficiency virus. Belitung Nursing Journal, 5(4), 147-154. https://doi.org/10.33546/bnj.813

Bernard, S., Tailor, A., Jones, P., & Alexander, D. E. (2016). Addressing the medical and support service needs of people living with HIV (PLWH) through program collaboration and service integration (PCSI). Californian Journal of Health Promotion, 14(1), 1-14. https://doi.org/10.32398/cjhp.v14i1.1860

Bilinski, A., Birru, E., Peckarsky, M., Herce, M., Kalanga, N., Neumann, C., . . . McBain, R. (2017). Distance to care, enrollment and loss to follow-up of HIV patients during decentralization of antiretroviral therapy in Neno District, Malawi: A retrospective cohort study. Plos One, 12(10), e0185699. https://doi.org/10.1371/journal.pone.0185699

Creswell, J. W. (2013). Qualitative inquiry and research design: Choosing among five approaches (3rd ed.). Thousand Oaks, CA: SAGE.

Cunningham, C. O., Buck, J., Shaw, F. M., Spiegel, L. S., Heo, M., & Agins, B. D. (2014). Factors associated with returning to HIV care after a gap in care in New York State. Journal of Acquired Immune Deficiency Syndromes, 66(4), 419-427. https://doi.org/10.1097/QAI.0000000000000171

Dang, B. N., Westbrook, R. A., Black, W. C., Rodriguez-Barradas, M. C., & Giordano, T. P. (2013). Examining the link between patient satisfaction and adherence to HIV care: A structural equation model. Plos One, 8(1), e54729. https://doi.org/10.1371/journal.pone.0054729

Falkenberry, H., McCallum, L., Sebayang, M., Burrows, D., & Parsons, D. (2018). Assessment of HIV service packages for key populations in Indonesia. Washington, DC: APMG Health.

Fauk, N. K., Merry, M. S., Putra, S., Sigilipoe, M. A., Crutzen, R., & Mwanri, L. (2019). Perceptions among transgender women of factors associated with the access to HIV/AIDS-related health services in Yogyakarta, Indonesia. Plos One, 14(8), e0221013. https://doi.org/10.1371/journal.pone.0221013

Ford, N., Vitoria, M., & Doherty, M. (2018). Providing antiretroviral therapy to all who are HIV positive: The clinical, public health and programmatic benefits of treat all. Journal of the International AIDS Society, 21(2). https://doi.org/10.1002/jia2.25078

Gilks, C. (2019). Role of communities in AIDS response. The Indian Journal of Medical Research, 150(6), 515-517. https://doi.org/10.4103/ijmr.IJMR_2526_19

Haghighat, R., Steinert, J., & Cluver, L. (2019). The effects of decentralising antiretroviral therapy care delivery on health outcomes for adolescents and young adults in low-and middle-income countries: A systematic review. Global Health Action, 12(1), 1668596. https://doi.org/10.1080/16549716.2019.1668596

Harapan, H., Feramuhawan, S., Kurniawan, H., Anwar, S., Andalas, M., & Hossain, M. B. (2013). HIV-related stigma and discrimination: A study of health care workers in Banda Aceh, Indonesia. Medical Journal of Indonesia, 22(1), 22-29. https://doi.org/10.13181/mji.v22i1.518

Havlir, D. V., Balzer, L. B., Charlebois, E. D., Clark, T. D., Kwarisiima, D., Ayieko, J., . . . Chamie, G. (2019). HIV testing and treatment with the use of a community health approach in rural Africa. New England Journal of Medicine, 381(3), 219-229. https://doi.org/10.1056/NEJMoa1809866

Hill, A. M., & Pozniak, A. L. (2016). How can we achieve universal access to low-cost treatment for HIV? Journal of Virus Eradication, 2(4), 193-197. https://doi.org/10.1016/S2055-6640(20)30871-2

Johnson, L. F., May, M. T., Dorrington, R. E., Cornell, M., Boulle, A., Egger, M., & Davies, M.-A. (2017). Estimating the impact of antiretroviral treatment on adult mortality trends in South Africa: A mathematical modelling study. PLoS Medicine, 14(12), e1002468. https://doi.org/10.1371/journal.pmed.1002468

Kay, E. S., Batey, D. S., & Mugavero, M. J. (2016). The HIV treatment cascade and care continuum: Updates, goals, and recommendations for the future. AIDS Research and Therapy, 13(1), 1-7. https://doi.org/10.1186/s12981-016-0120-0

Keller, S. C., Yehia, B. R., Momplaisir, F. O., Eberhart, M. G., Share, A., & Brady, K. A. (2014). Assessing the overall quality of health care in persons living with HIV in an urban environment. AIDS Patient Care and STDs, 28(4), 198-205. https://doi.org/10.1089/apc.2014.0001

Kolawole, G. O., Gilbert, H. N., Dadem, N. Y., Genberg, B. L., Agaba, P. A., Okonkwo, P., . . . Ware, N. C. (2017). Patient experiences of decentralized HIV treatment and care in Plateau State, North Central Nigeria: A qualitative study. AIDS Research and Treatment, 2017. https://doi.org/10.1155/2017/2838059

Leon, C., Koosed, T., Philibert, B., Raposo, C., & Benzaken, A. S. (2019). HIV/AIDS health services in Manaus, Brazil: Patient perception of quality and its influence on adherence to antiretroviral treatment. BMC Health Services Research, 19(1), 1-11. https://doi.org/10.1186/s12913-019-4062-9

Lubogo, D., Ddamulira, J. B., Tweheyo, R., & Wamani, H. (2015). Factors associated with access to HIV care services in eastern Uganda: The Kumi home based HIV counseling and testing program experience. BMC Family Practice, 16(1), 1-9. https://doi.org/10.1186/s12875-015-0379-6

Mesquita, F., Winarso, I., Atmosukarto, I. I., Eka, B., Nevendorff, L., Rahmah, A., . . . Angela, R. (2007). Public health the leading force of the Indonesian response to the HIV/AIDS crisis among people who inject drugs. Harm Reduction Journal, 4(1), 1-6. https://doi.org/10.1186/1477-7517-4-9

Ministry of Health of Indonesia. (2018). InfoDatin-HIV-AIDS-2018. Retrieved from https://pusdatin.kemkes.go.id/article/view/20111200002/infodatin-hiv.html.

Moradi, G., Mohraz, M., Gouya, M. M., Dejman, M., Seyedalinaghi, S., Khoshravesh, S., & Ardakani, H. M. (2014). Health needs of people living with HIV/AIDS: From the perspective of policy makers, physicians and consultants, and people living with HIV/AIDS. Iranian Journal of Public Health, 43(10), 1424-1435.

Mugavero, M. J., Norton, W. E., & Saag, M. S. (2011). Health care system and policy factors influencing engagement in HIV medical care: Piecing together the fragments of a fractured health care delivery system. Clinical Infectious Diseases, 52(suppl_2), S238-S246. https://doi.org/10.1093/cid/ciq048

Odeny, T. A., Penner, J., Lewis-Kulzer, J., Leslie, H. H., Shade, S. B., Adero, W., . . . Bukusi, E. A. (2013). Integration of HIV care with primary health care services: Effect on patient satisfaction and stigma in rural Kenya. AIDS Research and Treatment, 2013, 485715. https://doi.org/10.1155/2013/485715

Pérez-Salgado, D., Compean-Dardón, M. S., Staines-Orozco, M. G., & Ortiz-Hernández, L. (2015). Satisfaction with healthcare services and adherence to antiretroviral therapy among patients with HIV attending two public institutions. Revista de Investigación Clinica, 67(2), 80-88.

Risal, A., Irwan, A. M., & Sjattar, E. L. (2018). Stigma towards people living with HIV/AIDS among counseling officers in South Sulawesi, Indonesia. Belitung Nursing Journal, 4(6), 552-558. https://doi.org/10.33546/bnj.543

Rouleau, G., Richard, L., Côté, J., Gagnon, M.-P., & Pelletier, J. (2019). Nursing practice to support people living with HIV with antiretroviral therapy adherence: A qualitative study. The Journal of the Association of Nurses in AIDS Care, 30(4), e20-e37. https://doi.org/10.1097/JNC.0000000000000103

Senyurek, G., Kavas, M. V., & Ulman, Y. I. (2021). Lived experiences of people living with HIV: A descriptive qualitative analysis of their perceptions of themselves, their social spheres, healthcare professionals and the challenges they face daily. BMC Public Health, 21(1), 1-15. https://doi.org/10.1186/s12889-021-10881-y

Siedner, M. J., & Triant, V. (2019). Undetectable= Untransmittable and your health: The personal benefits of early and continuous therapy for HIV infection. The Journal of Infectious Diseases,, 219(2), 173-176. https://doi.org/10.1093/infdis/jiy445

Smith, D. W. (2018). "Phenomenology", the Stanford encyclopedia of philosophy. California: Metaphysic Research Lab Stanford University.

Smith, M. K., Miller, W. C., Liu, H., Ning, C., He, W., Cohen, M. S., & Wang, N. (2017). Effects of patient load and travel distance on HIV transmission in rural China: Implications for treatment as prevention. Plos One, 12(5), e0177976. https://doi.org/10.1371/journal.pone.0177976

Speziale, H. S., Streubert, H. J., & Carpenter, D. R. (2011). Qualitative research in nursing advancing the humanistic imperative (5th ed.). Philadelphia: Lippincott Williams & Wilkins.

Stutterheim, S. E., Sicking, L., Brands, R., Baas, I., Roberts, H., Van Brakel, W. H., . . . Bos, A. E. R. (2014). Patient and provider perspectives on HIV and HIV-related stigma in Dutch health care settings. AIDS Patient Care and STDs, 28(12), 652-665. https://doi.org/10.1089/apc.2014.0226

Subramanian, S., Edwards, P., Roberts, S. T., Musheke, M., & Mbizvo, M. (2019). Integrated care delivery for HIV prevention and treatment in adolescent girls and young women in Zambia: Protocol for a cluster-randomized controlled trial. JMIR Research Protocols, 8(10), e15314. https://doi.org/10.2196/15314

Tafuma, T. A., Mahachi, N., Dziwa, C., Moga, T., Baloyi, P., Muyambo, G., . . . Murungu, J. (2018). Barriers to HIV service utilisation by people living with HIV in two provinces of Zimbabwe: Results from 2016 baseline assessment. Southern African Journal of HIV Medicine, 19(1). https://doi.org/10.4102/hivmed.v19i1.721

Terzian, A. S., Younes, N., Greenberg, A. E., Opoku, J., Hubbard, J., Happ, L. P., . . . Castel, A. D. (2018). Identifying spatial variation along the HIV care continuum: The role of distance to care on retention and viral suppression. AIDS and Behavior, 22(9), 3009-3023. https://doi.org/10.1007/s10461-018-2103-8

UNAIDS. (2018). Differentiated service for HIV: A decision framework for differentiated antiretroviral therapy delivery for key population - The last mile to universal access. Retrieved from https://differentiatedservicedelivery.org/Portals/0/adam/Content/2a0WxWUHfUKtul1mKWdmGQ/File/Decision%20Framework%20Key%20Population%20Web3.pdf

United Nations. (2016). Transforming our world: The 2030 agenda for sustainable development. Retrieved from https://stg-wedocs.unep.org/bitstream/handle/20.500.11822/11125/unepswiosm1inf7sdg.pdf?sequence=1

US Department of Health & Human Services. (2020). The global HIV/AIDS epidemic. Retrieved from https://www.hiv.gov/hiv-basics/overview/data-and-trends/global-statistics

Watts, G. F., Kelley, D., Wilson, M. M., Arts, S., & Mims, J. (2019). Jurisdictional coordination of integrated HIV prevention and patient care planning and implementation. Journal of the International Association of Providers of AIDS Care (JIAPAC), 18, 2325958219880532. https://doi.org/10.1177/2325958219880532

World Health Organization. (2016). Global health sector strategy on HIV 2016-2021. Geneva, Switzerland: World Health Organization.

World Health Organization. (2019a). Maintaining and improving quality of care within HIV clinical services. Retrieved from https://apps.who.int/iris/handle/10665/325857

World Health Organization. (2019b). Progress report on HIV, viral hepatitis and sexually transmitted infections 2019: Accountability for the global health sector strategies, 2016–2021. Retrieved from https://apps.who.int/iris/handle/10665/324797

World Health Organization. (2020). HIV/AIDS treatment and care. Retrieved from https://www.who.int/health-topics/hiv-aids/#tab=tab_3

World Health Organization, UNICEF, & UNAIDS. (2013). Global update on HIV Treatment 2013: Results, impact and opportunities. Retrieved from https://www.unaids.org/sites/default/files/media_asset/20130630_treatment_report_en_0.pdf

Wroe, E. B., Dunbar, E. L., Kalanga, N., Dullie, L., Kachimanga, C., Mganga, A., . . . Nazimera, L. (2018). Delivering comprehensive HIV services across the HIV care continuum: A comparative analysis of survival and progress towards 90-90-90 in rural Malawi. BMJ Global Health, 3(1). http://dx.doi.org/10.1136/bmjgh-2017-000552


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