CAREGIVERS’ EXPERIENCE IN MEETING SELF-CARE NEEDS OF ADOLESCENTS WITH AUTISM SPECTRUM DISORDER: A QUALITATIVE STUDY
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Keywords

caregiver experience
main caregiver
adolescent
autism spectrum disorder
self-care
basic needs

How to Cite

Lestari, L., Herini, E. S., & Gamayanti, I. L. (2017). CAREGIVERS’ EXPERIENCE IN MEETING SELF-CARE NEEDS OF ADOLESCENTS WITH AUTISM SPECTRUM DISORDER: A QUALITATIVE STUDY. Belitung Nursing Journal, 3(4), 316–328. https://doi.org/10.33546/bnj.123
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Accepted for publication: 2017-08-18
Peer reviewed: Yes

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Abstract

Background: Autism spectrum disorder is a complex developmental disorder, which increased rapidly than other developmental disorders in the world. This complex disorder affects a child’s self-autonomy, which has become a challenge for their parents or caregivers.

Objective: This study is to explore main caregivers’ experience to meet self-care needs of adolescents with autism spectrum disorder in Pontianak, West Borneo, Indonesia.

Methods: This study employed a qualitative design with semi-structured in-depth interviews. Seven main caregivers who are living together and taking care of the adolescents with autism spectrum were selected using a purposive sampling. Triangulation was conducted to ensure the trustworthiness of this study, including interviews, observations of self-care activities, documents such as photos, learning reports, and field notes. Participants’ statements were recorded using a voice recorder, and then transcribed, coded, interpreted, and categorized to form main themes and sub-themes.

Results: The study identified three main themes: 1) autonomy in self-care, 2) care effort, 3) feelings, supports, and expectations. These findings emphasize the potentials of the children with autism to be autonomous in their daily self-care.

Conclusions: Adolescents with autism spectrum disorder can potentially meet the needs of their daily care independently.

 

This article has been corrected with a separate erratum: 

https://doi.org/10.33546/bnj.1146

https://doi.org/10.33546/bnj.123
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Copyright

Copyright (c) 2017 Lilis Lestari, Elisabeth. S. Herini, Indria Laksmi Gamayanti

Creative Commons License

This work is licensed under a Creative Commons Attribution 4.0 International License.

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