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Mardiyanti, M., Cuthbertson, L., & Jewell, P. (2020). WHAT ROLES DO INDONESIAN NURSES PLAY IN THE EARLY IDENTIFICATION AND INTERVENTION OF CHILDREN WITH DEVELOPMENTAL DISABILITIES? A QUALITATIVE STUDY. Belitung Nursing Journal, 6(2), 35-40. https://doi.org/10.33546/bnj.1039


Background: Developmental delays can be a basis for identifying children who may experience a disability. Accordingly, developmental screenings and monitoring are implemented to facilitate early identification of developmental disabilities

Objective: To explore Indonesian’s community nurses’ perceptions regarding their roles in the early identification and intervention of developmental disabilities

Method: This was a descriptive phenomenological study. Eleven community health nurses participated in a multiple semi-structured interview. Thematic analysis was used to analyse data.

Findings: Four themes of nursing roles emerged, these include parents’ expression of need, a focus on curative management, provision of nursing care and being alert to discuss a possible developmental delay. Indonesian nurses describe their roles as focusing on curative management and include monitoring child growth and nutritional status because they perceive these roles as the main program of the centres and as to fulfilling parents’ expressions of needs, however they will raise concern when it is suspected or observed, that the child has delayed development.

Conclusion: Child’s developmental surveillance has been implemented in developed countries as the basis to identify developmental disabilities earlier in children, however Indonesian nurses focus more on nutrition and eradicating communicable diseases rather than child’s developmental monitoring. More investigation is needed to find barriers of implementation of developmental screenings.




American Association on Intellectual and Developmental Disabilities. (2020). Retrieved from https://www.aaidd.org/intellectual-disability/definition/faqs-on-intellectual-disability

Armstrong, K. L., Fraser, J. A., Dadds, M. R., & Morris, J. (1999). A randomized, controlled trial of nurse home visiting to vulnerable families with newborns. Journal of Paediatrics and Child Health, 35(3), 237-244. https://doi.org/10.1046/j.1440-1754.1999.00348.x

Armstrong, M. F., & Goldfeld, S. (2008). Systems of early detection in Australian communities: the use of a developmental concern questionnaire to link services. Australian Journal of Advanced Nursing, 25(3), 36.

Australian Health Ministers' Advisery Council. (2011). National framework for universal child and family health services. Retrieved from http://www.health.gov.au/internet/main/publishing.nsf/Content/AFF3C1C460BA5300CA257BF0001A8D86/$File/NFUCFHS.PDF

Barbaro, J., Ridgway, L., & Dissanayake, C. (2011). Developmental surveillance of infants and toddlers by maternal and child health nurses in an Australian community-based setting: promoting the early identification of autism spectrum disorders. Journal of Pediatric Nursing, 26(4), 334-347. https://doi.org/10.1016/j.pedn.2010.04.007

Barnes, M., Courtney, M., Pratt, J., & Walsh, A. (2003). Contemporary child health nursing practice: services provided and challenges faced in metropolitan and outer Brisbane areas. Collegian, 10(4), 14-19. https://doi.org/10.1016/s1322-7696(08)60071-2

Batshaw, M., Roizen, N., & Lotrecchiano, G. (2013). Children with disabilities (7th ed.). Baltimore: Paul.H.Brookes publishing Co.

Braun, V., & Clarke, V. (2006). Using thematic analysis in psychology. Qualitative Research in Psychology, 3(2), 77-101.

Caley, L. M., Shipkey, N., Winkelman, T., Dunlap, C., & Rivera, S. (2006). Evidence-based review of nursing interventions to prevent secondary disabilities in fetal alcohol spectrum disorder. Pediatric Nursing, 32(2), 155-162.

Charema, J. (2012). Early Intervention for Children with Disabilities in countries south of the Sahara: How do family and community involvement and cultural values benefit intervention programs? . Linguistics, Culture & Education, 1(2), 311-331.

Fraser, S., Grant, J., & Mannix, T. (2016). Maternal child and family health nurses: delivering a unique nursing speciality. Maternal and Child Health Journal, 20(12), 2557-2564. https://doi.org/10.1007/s10995-016-2081-2

Giordano, K. (2008). Barriers to early intervention services in New Jersey. (Doctor of Psychology), Fairleigh Dickinson University, New Jersey.

Glascoe, F. P. (2005). Screening for developmental and behavioral problems. Mental Retardation and Developmental Disabilities Research Reviews, 11(3), 173-179.

Glascoe, F. P., & Dworkin, P. H. (1995). The role of parents in the detection of developmental and behavioral problems. Pediatrics, 95(6), 829-836.

Grantham-McGregor, S., Cheung, Y. B., Cueto, S., Glewwe, P., Richter, L., Strupp, B., & International Child Development Steering, G. (2007). Developmental potential in the first 5 years for children in developing countries. The Lancet, 369(9555), 60-70. https://doi.org/10.1016/s0140-6736(07)60032-4

Guevara, J. P., Gerdes, M., Localio, R., Huang, Y. V., Pinto-Martin, J., Minkovitz, C. S., . . . Kavanagh, J. (2013). Effectiveness of developmental screening in an urban setting. Pediatrics, 131(1), 30-37. https://doi.org/10.1542/peds.2012-0765d

Guralnick, M. J. (2005). Early intervention for children with intellectual disabilities: Current knowledge and future prospects. Journal of Applied Research in Intellectual Disabilities, 18(4), 313-324. https://doi.org/10.1111/j.1468-3148.2005.00270.x

Hamilton, S. (2006). Screening for developmental delay: reliable, easy-to-use tools: win-win solutions for children at risk and busy practitioners. Journal of Family Practice, 55(5), 415-423.

King, T. M., Tandon, S. D., Macias, M. M., Healy, J. A., Duncan, P. M., Swigonski, N. L., . . . Lipkin, P. H. (2010). Implementing developmental screening and referrals: lessons learned from a national project. Pediatrics, 125(2), 350-360. https://doi.org/10.1542/peds.2009-0388

Macy, M., Marks, K., & Towle, A. (2014). Missed, misused, or mismanaged: improving early detection systems to optimize child outcomes. Topics in Early Childhood Special Education, 34(2), 94-105. https://doi.org/10.1177/0271121414525997

Marks, K. P., Page Glascoe, F., & Macias, M. M. (2011). Enhancing the algorithm for developmental–behavioral surveillance and screening in children 0 to 5 years. Clinical Pediatrics, 50(9), 853-868. https://doi.org/10.1177/0009922811406263

Ministry of Health. (2015). Rencana strategies Kementerian Kesehatan tahun 2015-2019; Keputusan Kementerian Kesehatan Republik Indonesia Nomor Hk.02.02 /Menkes/52/2015 [Ministry of Health strategy plan for 2015-2019; Decree of the Ministry of Health of the Republic of Indonesia Number Hk.02.02 / Menkes / 52/2015]. Retrieved from https://www.kemkes.go.id/resources/download/info-publik/Renstra-2015.pdf.

Ministry of Health. (2019). Profile Kesehatan Indonesia tahun 2018 [Indonesia Health Profile year 2018]. Retrieved from https://pusdatin.kemkes.go.id/folder/view/01/structure-publikasi-pusdatin-profil-kesehatan.html

Munhall, P. (2007). Nursing Research: A Qualitative Perspective.

Patel, D. R., Greydanus, D. E., Calles Jr, J. L., & Pratt, H. D. (2010). Developmental disabilities across the lifespan. Disease-a-Month, 56(6), 305-397.

Pinto-Martin, J. A., Souders, M. C., Giarelli, E., & Levy, S. E. (2005). The role of nurses in screening for autistic spectrum disorder in pediatric primary care. Journal of Pediatric Nursing, 20(3), 163-169. https://doi.org/10.1016/j.pedn.2005.01.004

Pizur-Barnekow, K., Erickson, S., Johnston, M., Bass, T., Lucinski, L., & Bleuel, D. (2010). Early identification of developmental delays through surveillance, screening, and diagnostic evaluation. Infants & Young Children, 23(4), 323-330. https://doi.org/10.1097/iyc.0b013e3181f422a4

Polit, D. F., & Beck, C. T. (2010). Essential of nursing research: Apraising evidence for nursing practice (7th ed.). China: Wolter Kluwer Health Lippincott William & Wilkins.

Robert (2014, June 25th). [Personal communication].

Rydz, D., Shevell, M. I., Majnemer, A., & Oskoui, M. (2005). Topical review: developmental screening. Journal of Child Neurology, 20(1), 4-21. https://doi.org/10.1177/08830738050200010201

Skovgaard, A. M., Houmann, T., Christiansen, E., Olsen, E. M., Landorph, S. L., Lichtenberg, A., & Jørgensen, T. (2008). Can a general health surveillance between birth and 10 months identify children with mental disorder at 1½ year? European Child & Adolescent Psychiatry, 17(5), 290-298. https://doi.org/10.1007/s00787-007-0666-4

Squires, J., Katzev, A., & Jenkins, F. (2002). Early screening for developmental delays: Use of parent-completed questionnaires in Oregon's Healthy Start Program. Early Child Development and Care, 172(3), 275-282. https://doi.org/10.1080/03004430290030804

Taylor, B., Kermode, S., & Roberts, K. (2006). Research in nursing and health care: evidence for practice (3rd ed.). Victoria, Australia: Thompson.

Tobin, G. A., & Begley, C. M. (2004). Methodological rigour within a qualitative framework. Journal of advanced nursing, 48(4), 388-396.

Walker, S. P., Wachs, T. D., Gardner, J. M., Lozoff, B., Wasserman, G. A., Pollitt, E., . . . International Child Development Steering, G. (2007). Child development: risk factors for adverse outcomes in developing countries. The Lancet, 369(9556), 145-157. https://doi.org/10.1016/s0140-6736(07)60076-2

Walsh, A., & Mitchell, A. E. (2013). A pilot study exploring Australian general practice nurses' roles, responsibilities and professional development needs in well and sick child care. Neonatal, Paediatric & Child Health Nursing, 16(2), 21.

WHO. (2012). Early childhood development and disability: A discussion paper. Malta: WHO UNICEF.

Williams, J. (2007). Learning from mothers: how myths, policies and practices affect the detection of subtle developmental problems in children. Child: Care, Health and Development, 33(3), 282-290. https://doi.org/10.1111/j.1365-2214.2006.00690.x

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